SWAN

Syndromes Without A Name USA (SWAN USA) is a non-profit tax exempt organization that offers support, information and advice to families of children living with a syndrome without a name. They are often described in many different ways such as; undiagnosed syndrome, unknown diagnosis, mystery diagnosis.

The SWAN USA team is dedicated to surrounding the questions for children undiagnosed. Families are often faced with conditions that presents themselves though remain a mystery to their medical providers for years. According the National Institutes of Health, some estimate that 20 to 30 percent of children with special needs lack a specific diagnosis. 

For more information, please visit the SWAN website