Backpack health reduces data-sharing barriers between the medical community and individuals with rare diseases

• Authors: Lauren May; Meghan C. Towne; Ginger Haynes; Emily Dalton; Holly LaDuca; Eileen Masciale; Kim J Stephens; Melissa Hogan; Michael Shapiro-Barr; Roughan Sheedy; Erin Smith
• Collaborators: Backpack Health; Doulots, LLC; Marfan Foundation
• Journal: American journal of medical genetics. Part C, Seminars in medical genetics
• Date: 2021 - Mar