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A Hope Story: Prenatal Patient Advocacy

Thursday, October 12, 2023
4:00am PDT
1 hour
C.E.U.: 1 Category 1 Contact Hour
P.A.C.E.: 1 Unit

Each attendant will hear a firsthand parent account of their diagnosis experience when they learned that their son had Down Syndrome. That experience led them to start Hope Story, a non-profit dedicated to helping physicians, midwives, genetic counselors, and any other medical professional involved in an initial Down Syndrome diagnosis experience to have the communication skills and resources needed to relay this information with accuracy and compassion. They will then hear from a Maternal Fetal Medicine physician who has seen the benefit of the community connection that Hopestory.org has provided for her patients. She will discuss a communication framework that has also been endorsed in the literature as being optimally beneficial for these families at the time of their diagnosis conversation.

Level of Instruction: Basic

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Margo Gallegos
Genomic Science Liasion II at Ambry Genetics
Margo Gallegos joined Ambry Genetics in 2020 as the Specialty Genomic Science Liaison for the Northeast United States territory. She previously worked as a pediatric genetic counselor at Children’s National Medical Center in Washington, D.C, and an oncology genetic counselor at Anne Arundel Medical Center in Annapolis, MD. Her volunteer interests include public policy and […]
Margo Gallegos joined Ambry Genetics in 2020 as the Specialty Genomic Science Liaison for the Northeast United States territory. Margo received her Bachelors of Science degree in Cell Biology and Genetics from University of Maryland, College Park. She earned her Masters of Science degree in Genetic Counseling from University of South Carolina School of Medicine and is certified by the American Board of Genetic Counseling. She previously worked as a pediatric genetic counselor at Children’s National Medical Center in Washington, D.C, and an oncology genetic counselor at Anne Arundel Medical Center in Annapolis, MD. Her volunteer interests include public policy and licensure of genetic counselors both at the state and federal level. She previously helped lead the effort to obtain licensure for genetic counselors in Maryland. She is currently a chair on the NSGC Access and Service Delivery Committee and chair of the Maryland Board of Physicians Genetic Counseling Regulatory Committee.